Last updated: August 6, 2020 || Created: May 1, 2020
About this page
This page collects links to intellectual property collaborations (related primarily to patent law) and to data sharing hubs (related primarily to research data) directed to investigating and treating COVID-19 infections.
It includes links to information and data sharing collaborations of many sorts, including biobanks related to COVID-19 and other relevant research collaborations, in the public sector, the private sector, in universities and other research enterprises, in NGOs, and blends of all of these.
Why this page
The motivation is highlighting the myriad ways in which institutional collaborations have emerged and are evolving to deal with a large scale public health need, in the near term and over the long term.
In the near term, read Ali Okhowat, Sharing tools and data will help us beat COVID-19, World Economic Forum, 17 April 2020.
Also: World Health Organization (WHO), Making the response to COVID-19 a public common good / Solidarity Call to Action
In the long term, that motivation arises from the long-term research agenda on knowledge, information, and data governance known as “knowledge commons.” For an introduction to the “knowledge commons” framework to data sharing in the public health context, see Michael J. Madison, Biobanks as Knowledge Institutions, in Global Genes, Local Concerns: Legal, Ethical, and Scientific Challenges in International Biobanking (Timo Minssen, Janne Rothmar Herrmann, and Jens Schovsbo eds.) (Edward Elgar Publishing, 2019) (available here as a free download).
Who created this page
This page is maintained by Professor Michael Madison, at the University of Pittsburgh School of Law, in Pittsburgh, Pennsylvania, USA. Corrections, clarifications, and additions may be shared via email at madison [at] pitt [dot] edu and/or on Twitter @profmadison.
Intellectual Property collaborations
Patent and Technology Pools
Patent Pledges and Open Licensing Collaborations
Other Patent Pledges and Flexible Licenses
Data Sharing and Computation collaborations
Commitments and Priorities
Sharing research data and findings relevant to the novel coronavirus (COVID-19) outbreak (Wellcome Trust and others) (31 January 2020) (extending the Statement on data sharing in public health emergencies (1 February 2016)
The World Health Organization is publishing a “COVID-19 Open” data sharing protocol. Read Vasee Moorthy, et al., Data sharing for novel coronavirus (COVID-19), Bulletin of the World Health Organization 2020; 98:150. DOI: http://dx.doi.org/10.2471/BLT.20.251561.
Plan(s), Strategies, and Coordination
Shared Data, Analytics, and Metrics
Shared Research and Literature Reviews
COVID-19 Biobanks and Libraries
Public Policy and Law
Proposals re Electronic Health Records (EHRs)
“Accelerating Data Infrastructure For COVID-19 Surveillance And Management” [14 April 2020] (Aaron Miri, Daniel P. O’Neill, Health Affairs Blog)
Open Tools and Visualizations
Shared Legal Analysis: COVID-related risks and liabilities
To the extent possible under law, Michael Madison has waived all copyright and related or neighboring rights to “COVID-19 Intellectual Property and Data Sharing Collaborations.” This work is published from: United States.